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About you
How has neuroendocrine cancer affected you?
I have/had neuroendocrine cancer (diagnosis confirmed)
I may have neuroendocrine cancer (diagnosis suspected but not confirmed)
Someone I care for/about has neuroendocrine cancer (partner/family member/friend)
I am a healthcare professional (not related)
I am an allied healthcare professional (not related)
I work in the third sector (charity/support organisation)
I am a scientist/technician/researcher
I work in industry (pharmaceutical/device/product)
I work for Neuroendocrine Cancer UK
Other:
As someone living with neuroendocrine cancer, would you be willing to share a little more information about your diagnosis?
This helps us better understand the needs of our community, tailor our support and resources, and ensure we’re representing real patient experiences in our communications, campaigns, and services.
Please select...
Yes
No
Neuroendocrine Cancer Information
Do you know where your neuroendocrine cancer started (the primary site)?
This is sometimes called the “primary tumour” or “primary site” — e.g., small bowel, pancreas, lung, appendix.
Please select...
ACC (adrenocortical carcinoma)
Appendix
Bowel - Large bowel (colon)
Bowel - Small bowel ( jejunal, Ileal or caecal)
Breast
Duodenal
Gastric (stomach)
Goblet cell carcinoma
Gynae (cervical, uterine, ovarian, vaginal or vulval)
Liver
Lung
MEN (multiple endocrine neoplasia)
Pancreas* (functioning or non-functioning)
Paraganglioma (extra-adrenal phaeochromocytoma)
Phaeochromocytoma
Prostate
Rectal
Skin (merkel cell carcinoma)
Testicular
Thyroid (medullary thyroid carcinoma)
Unknown primary
Have you been told your neuroendocrine cancer has spread to other parts of your body?
(These are sometimes called “secondary sites” or “metastases” - e.g., liver, bones, lymph nodes.)
Please select...
Yes
No
Secondary Site(s) - tick all that apply
Bones
Brain
Breast
Heart / Pericardiac Tissue
Liver
Lungs
Lymph Nodes
Omentum
Ovary
Peri-orbital / Orbital Soft Tissue (eye)
Peritoneum
Neuroendocrine Cancer Hospital or Treatment Centre (if applicable):
Where are you receiving specialist care for your neuroendocrine cancer?
Local Hospital (if applicable)
Date of Diagnosis
If the exact date is unknown, please select the 1st of the month (e.g., 01/03/2025).
Treatment History - Select all that apply:
Surgery
Endoscopic Therapy
Somatostatin Analogues
Clinical Trial
Radiation Therapy
Interventional Radiology
Molecular Medical / Chemotherapy
Preferences
Support & Information
Support & Information
Support & Info Options
Newly Diagnosed Support
Living with Neuroendocrine Cancer
Support for Carers and Families
Patient Stories and Experiences
Symptom and Side Effect Management
Nutrition and Wellbeing
Educational Resources for Professionals
Research and Clinical Updates
Research and Clinical Updates
Research and Clinical Updates Options
Research Developments
Clinical Trials and Studies
Opportunities to Take Part in Research
Campaigns & Awareness
Campaigns & Awareness
Campaigns and Awareness Options
Awareness Campaigns
Advocacy Opportunities
World Neuroendocrine Cancer Day
Fundraising and Events
Fundraising and Events
Fundraising and Events Options
Fundraising News
Community Events
Challenges and Sponsored Activities
Get Involved
Get Involved
Get Involved Options
Volunteering Opportunities
Sharing My Story
Corporate Partnerships
I’m a healthcare professional wanting to support your work
All of the above
All of the above
Other:
Keeping in touch
Please be assured that your details will only be used by Neuroendocrine Cancer UK. We will never share your information with other organisations for their own purposes. You can change your contact preferences at any time.
Consent
I give my consent for Neuroendocrine Cancer UK to send me updates.
All information provided by you to Neuroendocrine Cancer UK will be securely kept on Neuroendocrine Cancer UK's database. We will not share your details, in accordance with UK law. To see our Privacy Policy please
click here
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