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Foundation Member Understanding

As Foundation Alliance Member Partners, we agree to:

  • Utilize RARE Foundation Alliance membership to enhance each individual organization
  • Share useful information and services with member organization network
  • Be a supportive partner to our Foundation Alliance member partners
  • Hold our leaders accountable for being a positive and responsive conduit between our organizational leaders and Global Genes

To be completed by an active member of the Organization

Please provide the following information so we can provide you with the most timely, relevant services and programs possible, and to maintain current contact and organization information.  Information marked with an asterisk is required.

Privacy Statement:  This information will be held in utmost confidence and not be shared nor published without your consent.

Use of data: The data collected will be used to offer high impact, relevant programs and services, and some information will be required for grant eligibility. Information provided may be used in aggregate for periodic rare disease landscape reporting.