2022 RARE Meet-Ups Impact Grant

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Thank you for your interest in applying for the 2022 RARE Meet-Ups Impact Grant.

RARE meet-ups for 2022 will consist of Five (5), 3-4 hour regional/local in-person meetings that will be held between April and November 2022 in partnership with regional/local RARE Foundation Alliance member(s). Please note that each grant awardee will be required to host one meet-up. Through our RARE Patient Impact Grant Program, Global Genes will determine and partner with grant awardees to provide marketing support and materials, resources and co-development content.

Grant applications will be accepted until Friday, February 4, 2022. Grant recipients will be notified of acceptance by Monday, February 21, 2022, and publicly announced later that week.

For more information on this grant opportunity, click HERE.

If you have any questions, please contact us at raregrants@globalgenes.org.
Grant Category


Primary Applicant Contact Information







This is the person Global Genes will be working with to organize and manage these meet-ups. If the project manager is also your primary applicant, then please enter the same name as above.
Organization Details








Please enter the specific name of the disease that your organization works with.

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Patient Community Demographics


Please enter demographic information for your patient population below.

Tips:

  • Please do not enter the percent sign when inputting values. 
  • Please input values as whole numbers. For example, if the percent of your patient population that identifies as Native American is 3.8%, you can enter that as 4.
  • Percentages in each demographic category must add up to be 100%.

Ethnicity
Percentage (must add up to 100%)
Caucasian
Asian
Native American
Black/African American
Hispanic
Latino
Other (list below)

Total % MUST = 100
Primary Language
Percentage (must add up to 100%)
English
Spanish
Portuguese
Hindi
Chinese
French
Other

Total % MUST = 100
Gender
Percentages (must add up to 100%)
Female
Male
Other

Total % MUST = 100
U.S. Geographic Region Represented
Percentages (must add up to 100%)
Northeast
Mid-Atlantic
Southeast
Upper Midwest
Lower Midwest
Northwest
Southwest
Total % MUST = 100
Age Range
Percentages (must add up to 100%)
Newborn - 5
6 - 17
18 - 34
35 - 50
51+
Total % MUST = 100

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Organizational Capacity

Please input only the digits for your annual revenue without dollar signs or commas. For example, if your annual revenue is $5,000, you would input that value as 5000.






Proposed Meet-Up Details












Meet-Up Goals

Please list your top three goals for the meet-up below.