Patient Identification, Inclusion & Engagement for Rare CNS Disorders (PIE4CNS): Report and Recommendation for Action

Description:

The Patient Identification, Inclusion & Engagement for Central Nervous System Conditions (PIE4CNS) Initiative aims to address critical gaps in identifying, diagnosing, and developing treatments for rare neurological conditions. It is our goal to improve the diagnostic journey, research, drug development, and treatment for rare disease patients with neurological conditions


Please fill out the form below, and we’ll email you the full Phase 1 PIE4CNS report!