MPN Support Group Leader Survey 

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Engaging support groups is a vital part of advancing the MPN Research Foundation’s mission to stimulate original research and pursue new treatments — and ultimately a cure — for essential thrombocythemia, polycythemia vera, and myelofibrosis, collectively known as myeloproliferative neoplasms (MPN). By fostering connections among patients, caregivers, and advocates, support groups create an empowered community that amplifies the patient voice and provides invaluable insights to researchers.

These groups also play a crucial role in disseminating credible, research-backed information, ensuring the MPN community is informed and equipped to participate in clinical studies, contribute to advocacy efforts, and support innovative treatment development. Together, we are building a bridge between science and the lived experience of patients, expanding the global effort to realize breakthroughs in care and cures for MPNs.

Thank you for taking the time to complete this survey. Your input will help the MPN Research Foundation better understand the needs of support groups and improve access to resources for patients, caregivers, and healthcare
providers. 


















How can potential participants contact the support group to join? 















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