Hemophilia Federation of America

2024 Rural Needs Action Summit Registration

Tuesday, November 12, 2024

1:00 pm - 5:00 pm EST / Noon - 4 pm CST / 11 am - 3 pm Mountain / 10 am - 2 pm PST


Thank you for your interest in HFA's Rural Needs Action Summit.


This will be HFA's first-ever summit solely geared entirely towards the needs and treatment of rural community members.


About: The summit will feature major stakeholders, patient organizations, and community members speaking on issues related to barriers to care for rural community members, communities of concern in rural spaces, and advancements being made to reduce health disparities associated with limited access to treatment centers and services. The summit, hosted by HFA's rural working group is by the community and for the community.


Participants: Please take breaks as needed throughout the Summit. Ask questions, discuss your thoughts, and share your experiences in the chat box.


Thank you for your interest and contribution. Once you complete this form, you will be sent an email with the Zoom details that you can save to your calendar.


Schedule: (All times below listed are in Eastern Time)
1:00 pm ET - Welcome and Introductions
1:15 pm ET - Part 1: How does Rural Access to Care impact equitable access to care?
2:15 pm ET - Break
2:20 pm ET - Part 2. Idea Sharing! What's being done to address gaps in rural access to care?
3:30 pm ET - Break
3:35 pm ET - Part 3. Communities of Concern: What are the costs of these unmet needs?
4:45 pm ET - Wrap Up with Review, Resources, and Next Steps for 2025


For more information, contact Adrian Palau-Tejeda, Director of Health Equity and Community Engagement at healthequity@hemophiliafed.org.


About HFA

Hemophilia Federation of America is a national 501(c)(3) organization consisting of more than 50 member organizations and numerous individual members who offer assistance and grassroots advocacy education on behalf of the bleeding disorders community. Incorporated in 1994, the HFA provides programs and services to improve the quality of life for persons with hemophilia, von Willebrand disease (VWD) and other rare bleeding disorders.


For more information about HFA, visit our website at www.hemophiliafed.org.
Contact Info




Stakeholder Communities

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Bleeding Disorder




Experience




Hemophilia Federation invites you to complete our demographic and diversity questionnaire, answering questions concerning race and ethnicity, sexual orientation, and gender identity. Understanding that these are sensitive topics for many individuals in our community, responses are voluntary and not required to complete your registration.

The following information is being requested by Hemophilia Federation of America to better understand the diversity of event attendees and to better create spaces of understanding and belonging. We appreciate your help in ensuring that our programming is reaching underserved and marginalized communities.
Gender & Pronouns





(e.g., straight, lesbian/gay, bisexual, queer, heterosexual)
Demographics


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Diversity in its Fully Complexity